Jesscollins

Being accused of child abuse is very common to families of children with Ehler Danlos Syndrome the syndrome that runs in my family

Being accused of child abuse is very common to families of children with Ehler Danlos Syndrome ( the syndrome that runs in my family). The babies often have very low vitamin D levels which leads to infantile rickets, which causes bone fractures, often even during birth. They are often frequent, and without symptoms. So a baby can have several before one is caught. EDS is very under diagnosed. My daughter Mary was the first one diagnosed in our family, because I was in nursing school and refused to accept that dislocating joints was a normal thing in any family. Please watch is you are able.

 2020-10-14   Admin

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